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   General Discussion -> Prayer RequestsMessage format
Posted 2010-06-18 4:54 PM (#39474)
Subject: about VEPTR


Posts: 7

Hello! I have 7 years old daughter name Aashvi. She has Arthrogryposis. Her scoliosis is now 60 degree. Her Dr. now recommended VEPTR. can you all please advise me about that procedure.should we wait little beat more or no. she had problem with anesthesia with last surgery.
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Posted 2010-06-18 9:55 PM (#39479 - in reply to #39474)
Subject: RE: about VEPTR


Posts: 3243
Location: Utah


There are pros and cons to waiting.  Since Aashvi is already 7yrs old, the time is getting short.  Her lung tissues are nearing their "adult" stage.  If she is having any breathing issues at all, surgery sooner than later would be best.  Hopefully your surgeon has successfully treated other kids like her because her arthrogryposis makes things more difficult.  Hopefully you have read about other kids here who have had VEPTR surgery.  Lots of good experiences here.  Keep asking questions.  If she's had a bad reaction to anesthesia before, I would be talking to an anesthesiologist, in depth, about what they can do to make her have a better experience.  The VEPTR implant surgery is a big surgery.  However, the benefits after the initial recovery are amazing.  Looking forward to hearing more.

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