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VEPTR for Jeunes Syndrme
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ans0014
Posted 2013-09-06 1:08 PM (#42056)
Subject: VEPTR for Jeunes Syndrme


New User

Posts: 1

Hi my son had his first VEPTR placed 12/28 and second placed 4/19 and first expansion 8/26. He now has left bronchus compression. Have any others had this issue and if so, how did you overcome it?
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Arlene "Zoe's mom"
Posted 2013-09-07 9:58 PM (#42068 - in reply to #42056)
Subject: Re: VEPTR for Jeunes Syndrme



Veteran

Posts: 152
1002525
Hi there, I will have one of our jeune's mom's get on here as soon as she can. Most of us use the facebook group: https://www.facebook.com/groups/56052176312/ VEPTR Kids.

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sawyer's mom
Posted 2013-09-07 10:07 PM (#42069 - in reply to #42056)
Subject: RE: VEPTR for Jeunes Syndrme



Extreme Veteran

Posts: 320
100100100
Location: Denver
my question is... is your child asymmetrical after the surgery? my son had compression which resolved when his other side was fixed and he was more even. you can pm me or call720-971-0921
melissa
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