Hi Erin,

Welcome.  There are several kids here who have had simple/straighforward lipomas or some other tethering of the spinal cord.  My son, Braydon, had a fatty filum (the most basic tethered cord in the neurosurgery world).  He has had two surgeries to untether/release the cord.

I hope you are seeing the top neurosurgeons in the country for this.  Lipoma in the spinal column can be dangerous.  You want to make sure you have all your options laid out and someone willing to help you make the right decisions at the right time.  Do you mind telling us where your daughter is being seen by neurosurgeons?  Maybe someone here can recommend a neurosurgeon who may have some experience with your daughter's condition.  Having an MRI is good.  You could send that to several neurosurgeons and ask for suggestions/recommendations.

Good luck to you.