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Location: Bruehl, Germany | We are going to hospital on Monday, the operation is scheduled for Tuesday. This is going to be Julian's first expansion surgery and at the same time they are going to put in a rod in the lower neck area to encourage growth in his crooked neck, and do a plaster cast for his next brace (he wears a night brace to help straighten his neck). I am rather worried because the idea of a surgery on the neck scares me. My husband is more relaxed about it... But I have conficence in his doctor, as the first operation was very successful.
Corinna
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Member
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| Hi Corinna, I will be thinking of and praying for your Julian next week. We will be having a similar week--Lilly is scheduled for a CT under general anasthesia on Tuesday and spinal cord surgery on Wednesday (all in preparation for VEPTR at a later date).
So glad to hear that you have confidence in his doctor, and glad you have a calm husband to help calm you. That is always a good thing!  Nice how our men can balance us sometimes.
Blessings,
Amy |
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Expert
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Location: Plymouth, Pennsylvania | CORINNA,
JULIAN IS IN OUR THOUGHTS AND OUR PRAYERS...
ZOE HAS WHAT I WOULD CALL, A 'TILTED NECK'...SEVERE FUSION IN THE NECK...
KEEP US POSTED WHEN TIME ALLOWS, AND KNOW WE ARE ALL THERE WITH YOU IN SPIRIT...
GOD BLESS.... |
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Elite Veteran
Posts: 971
Location: nixa mo | Keepi g Julian in my thoughts and prayers. |
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Member
Posts: 21
Location: Bruehl, Germany | Thanks for thinking of us...
The surgery yesterday went very well and was much less invasive than I had feared. I had thought it comparable to the first VEPTR placement, but maybe that was much harder because then they cut his fused ribs apart. So yesterday no tubes in or out after the surgery, no intensive care unit, not even IV. He came back to the ward after the operation and was fussy, but the night was rather easy, even though he was not on a lot of pain medication. Today he already wants to get up and play trains!
His doctor is very pleased with the result of the neck surgery. He hopes that with growth and continued use of a night brace, we might get the neck tilt back to only a slight asymmetry! The rib to spine rod was extended two notches - one centimeter - at the same time.
Best
Corinna |
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Elite Veteran
Posts: 971
Location: nixa mo | Thank you for sharing the good news. Hoping for a continued smooth recovery. |
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Member
Posts: 6
| Great new!! Glad it has gone so well. Keep us posted.
Cameo
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Expert
Posts: 1582
Location: Greenbush, Minnesota | Wonderful news!! |
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Keep us in your thoughts...
